Sons, daughters, other family members come and go. They “choose” when to arrive and when to leave.
Friends and family, recent & lifetime, connect when “they can”.
Choice and Time are theirs; when to stay and how to leave.
A small amount of guilt, a large amount of relief.
Long Term Care limits and controls.
Visitors can walk away.
Residents have less to no freedom to leave.
Friends & Family have “lives to lead” and “things to do”.
Often putting off, setting aside “the visit” or “the stay”.
Who has the “authority” and who “wants” to wear that hat?
Recall those times as kids when no one wanted to “be IT”?
The one who wore the mask, unable to see.
Hands outstretched, reaching for someone who kept moving.
That’s Dementia. That’s the Care Giver’s Everyday.
We who lived this way see life from very different angles.
You come and go, call and write but seldom visit and stay.
It’s too remindful, “there is where I someday might be”.
Too “real”, too “overwhelming”, seeing time that’s passed.
Next time “I’ll just call”. I can “visit” more often that way.
Really, I simply can’t face the sights, smells and limitations.
It’s my duty. It’s “my time to care”. I can come and go.
Then you “rationalize”, they don’t know me, they won’t recall
My visit is “for me” and it’s upsetting to hear and see.
“He” or “she” brings negative memories to mind.
We’re “so busy” and “too tired”.
Excuses and Reasons to skip another day.
To relieve our Souls we pause and recall.
The times when “they” failed to “give” or “learn”
We soothe ourselves painting over times we disagreed.
Soon come infrequent visits to a gravesite and Headstone.
We write our life story each day we’re allowed.
Then comes loss of decisions and control
Hands unable to change direction or stop what’s inevitable.
Who Me? I’ll always “have my say”
Life for me has always been “day to day”.
I welcome the challenge, the ways and the means.
I’ll hang on until I can no more.
I hope and pray someone hears and sees.
The best way to help is to see "Me".