Time Travel Entry
written Aril 29, 2013
published August, 2025
Deep in the time
of living with LBD
I wrote
to try to understand
To continue
going forward.
or at least
a table of contents
to a complex textbook.
Have been talking
Have been talking
with my daughter,
sharing the
many changes
I've noticed
in My Mom's/Grandma's
abilities to communicate.
Words substituted
with no relationship.
Loss of ability
to find words,
make or write
complete sentences.
Moving from one idea
to another
as though
they tie together
but with no bearing
on one another.
Talking, talking, talking.
Laughing & laughing,
or angry, angry, angry.
Never quite sure
which emotion
will surface
or present itself.
Finding others in
Finding others in
the LBD community --
their writings help.
I believe
there's a commonality
From man to woman,
From State to State,
From Country to Country.
For us it's
complicated
by visits from JH,
the woman who
befriended Mom.
She works
to cause
more confusion
and to try
to get Mom
to do things
and say things
that will cause
friction between us
& problems for Mom.
Reading, reading reading.
Reading, reading reading.
No one.
Not a single person
mentions the complex
and ever changing
"soap opera"
of the delusions,
halucinations
their loved ones relate.
There are strange things:
There are strange things:
seeing a zebra on the lawn,
mistaking a spouse (female)
for a secretary of many years,
remembering her as pregnant
(a laugh the spouse said
she'd been dieting
& lost thirty pounds).
Perhaps someone visiting
Perhaps someone visiting
mentioned the weight loss
and the LBD husband
rearranged the information
recollecting weight loss
after pregnancy.
This stimulated
recalling the memory
of the pregnant secretary --
mixing all together.
We found Mom's delusions
have some source
in a "real world" experience.
The loss of accurate language
can make LBD people
unable to communicate
a simple thought accurately.
LBD is like a mixer
with random ingredients
added in and never knowing
what the end results will be.
There are mental "drains"
where some fall through.
Other parts
never get mixed in,
some stay in large clumps,
others fall away.
This disease,
if you aren't suffering
from it as the person
or the caregiver,
can be fascinating.
It can also
be frightening
when you witness
the temperment
of the person
go from friendly
to furious
and back again
in what can be
split seconds.
Why aren't we
associating
other
"mental illnesses"
with LBD
and using research
in those areas --
like schizoprehenia
or brain damage?
Linking together
Linking together
these areas of study
might provide clues
to discovering
cures & ways to manage.
Talk about Dementia.
Talk about Dementia.
Read about LBD.
Spread the word.
Work towards a better future
Work towards a better future
for our aging population:
Volunteer at a Senior Center.
Advocate with State Legislatures.
Follow writers who dig deep.
Looking to share.
Showing they care.
